Helping to spread awareness empowering those affected by Keratoconus
Living With Keratoconus
Living with Keratoconus.org is exactly what it sounds like. A site dedicated to living with KC from someone who has lived with the condition for over two decades.
Not only can Living With Keratoconus.org be a place for those that have been newly diagnosed with keratoconus, but, by the same token, those that have been coping with KC for as long as I have, will find a place here as well.
In addition, there are those that are not affected with KC, but have someone in their lives living with KC and want to support them:
- What is Keratoconus?
- Will my loved one/ go blind?
- What are the different treatments?
- Are there any long-term prognoses and complications of keratoconushttps?
- Can we still drive at night with keratoconus?
Mental Toll of Keratoconus
Equally as important, is to understand the mental strain that keratoconus can have on those of us that have KC and those closest to us. A much-overlooked side issue resulting from KC is depression and isolation.
To understand KC we need to understand the physical condition, together with the mental health facet, as it relates to KC and living with it.
Lifestyle
- What kind of life can we live with keratoconus?
- Are there any limitations to the things we can achieve? If so, what are they?
- How will living with keratoconus affect our work, our relationships our family life?
At the present time, there is no cure. Although this is true, this does not mean our efforts to manage the condition shouldn’t be put elsewhere.
Attempts to understand which treatments can stop the progression of KC, like cross-linking, together with, which options are best to restore our vision. Like contact lenses for example are equally as important to understand how to manage keratoconus.
Restoring Our Vision: Scleral Lenses
Scleral contact lenses for keratoconus are one of the safest and most effect ways to help with our vision. This site will dive deep into the world of scleral lenses.
In my personal story, they have changed my life. I would have never been able to create this site without them. Therefore, Living With Keratoconus.org is a big supporter of this option for restoring vision.
- Who can wear scleral lenses?
- Why are they effective
- Are there any drawbacks to wearing the scleral lens for keratoconus?
Overall Health and Nutrition
As well as mental health being overlooked, equally overlooked, is our over all health. Many living with keratoconus not only deal the KC but also suffer from other health related problems. As a result, this will add to the stress of managing KC.
Living With Keratoconus.org believes in a holistic approach to dealing and coping with KC. Nutrition can play a part in relieving some of our other health issues, in fact, proper nutrition can reverse many conditions
Life Stress Management
Proper life stress management is another component to the holistic approach of Living With Keratoconus.org. We all know the impact that negative stress has on our health and spirit.
We can’t avoid all stress. Work, family health issues. It’s a part of our existence. However, we can try to control how we react to stress, together with keeping our bodies natural stress management system as healthy as possible.
Support Systems
Knowing we’re not alone makes all the difference in the world. Listening to others who are going or went through similar experiences with KC can shed a light on the unknown.
It can be a lonely place. When no one understands what living with keratoconus is doing to us. We look fine. Most of us are not walking into walls or stepping into oncoming traffic.
Friends, teachers, co-worker’s, family members, spouses even some doctors may think we are exaggerating the situation.
No one can know what it’s like except someone who has KC. It’s lonely of course… you are not alone.